Saturday, October 31, 2015

It's All Relative

My father fell.

Twice.

On the same day - about 14 hours apart.

He has no recollection of the first fall. It happened in the middle of the night and he has no memory of getting out of bed, of going to the bathroom, or why he fell, landing half in the hall and half in the bathroom. When he came to, he tried to reach the emergency pull cord to alert staff at his independent living facility but couldn’t maneuver himself in any kind of meaningful way to be successful.

So he laid there.

For hours.

The fire department came, once the aide who’d come to assist him with his compression stockings around 9 a.m. discovered him, got him on his feet, checked his blood pressure and made sure he could walk. He declined a ride to the hospital and insisted he was fine.

And then, just a couple of hours later, while another aide was there to check up on him, he fell again.

This time, he’d gone into the bathroom but was a little too late, starting to urinate before he’d gotten fully seated, so the floor was wet. When he tried to stand, his feet went out from underneath him and there he was, once again, on the floor. Stuck.

The fire department - same crew - responded again1. This time, however, they weren’t letting him off the hook. They insisted on taking him to the emergency room for a thorough work up. 

That was just over two weeks ago. He was admitted to the hospital for observation for a variety of reasons. His heart rate was elevated, his blood pressure was ridiculously low, and his kidney functions had skyrocketed...mostly because of the muscle breakdown from the fall trauma and lying on the floor, unable to move, for so long.

It became painfully clear, even in the emergency room, that the falls had impacted his ability to move or walk even a little. He was unable to stand on his own, urinate on his own, or even adjust himself in the bed without a lot of assistance.

To be clear, my father is a large man - weighing in at nearly 350 pounds. His mobility and balance have been getting increasingly worse for the last couple of years - due, in large part, to his weight - which is why we moved him to independent living to begin with...for his own safety. My siblings and I, along with pretty much everyone else he regularly comes in contact with, have been urging him for months to consider a walker.

He refused.

He would throw an absolute hiss over the suggestion, claiming he hated walkers because everyone at his apartment building is totally inconsiderate with their walkers and he wanted none of it. Forget about suggesting he could lead by example with his own walker. Foot down. NO.

And then he fell. Twice. In one day.

Hello, Walker.

Using a walker for the first, certainly not the last, time.

He was in the hospital for a total of five days (including day 0...his arrival in the emergency room). He met with a physical therapist and an occupational therapist that first full day and both immediately recommended rehab upon discharge.

And so now he’s at rehab (for falls, not the Amy Winehouse kind). Now that his heart rate, blood pressure, and kidney functions have returned to normal-ish.

And he ain’t happy about it. Not even a little bit. 

Frankly, neither am I.

There’s a reason why I don’t talk much about my dad.

Mostly, I don’t talk about him because I don’t really like him very much. 

There. I said it. 

He’s one of the most negative people I’ve ever had occasion to know. His locus of control is so externally focused that, if I didn’t know better, I’d think it was my fault I was ever born. He’s extremely passive aggressive and controlling. He rarely has anything nice to say. 

Not about anything.

Most certainly not about me.

But that doesn’t matter. 

Based largely on proximity (my sisters both live out of state and my brother is 90 minutes away), I am his Power of Attorney, his Medical Durable Power of Attorney, his caretaker. When he is incapacitated, as he is now, I’m in charge. The Boss, as he likes to say.

That doesn’t sit well with someone who absolutely must be in control.

He doesn’t like it and, right now, I’m not sure he particularly likes me.

Especially when he found out that he couldn’t discharge himself against medical advice. Only I could as MDPA.

And I won’t. 

Because no. 

Because doing so means he has to have around-the-clock care and that’s not something I’m able or willing to do and I told him so. I told him that I would no longer provide any assistance to him if he even tried to get himself discharged before he was capable of caring for himself.

Hello, Boundary.

He’s not a fan of boundaries. He said, “Fine. Whatever.”

Hello, Passive Aggression.

My face when he said he was going to discharge himself against medical advice.


I’m not complaining.

Really! I’m not.

I’ve spent the last 30+ years in therapy, on and off, dealing with my feelings and attitudes toward my father (among other things). What would be hard for many people - the onslaught of negativity, criticisms, boundary pushing - isn’t particularly difficult for me. I figured out his number years ago, which is why we’ve been largely estranged for the last decade or so, so pretty much everything he does or says rolls right off my back or gets met with a solid boundary. 

CAUTION: DO NOT CROSS.

Mostly?

I just really feel sorry for him.


  • I feel sorry for him that he has no will to live.
  • I feel sorry for him that he has no hobbies or interests outside of game shows...and porn2.
  • I feel sorry for him that he has no friends despite the fact that he has the ability to make and keep them if he would just. Let. Them. In.
  • I feel sorry for him that he’s spent the last 7 decades assuming everyone was out to get him instead of realizing just how often it’s not been about him.
  • I feel sorry for him that, no matter what anyone does or says, it won’t be good enough to suit him because, in the end, he doesn’t feel like he’s good enough to deserve it.
  • I feel sorry for him that he has held on to something I said over 30 years ago when I was 13 (“I’m not the one who abandoned my family!”) and let it cause him so much pain for so long without even trying to let it go.
  • I feel sorry for him that he can’t even enjoy the simply glorious feeling of warm, autumn sunshine on his shoulders without complaining about how he might burn.

He said, "How do you want me to smile? Funny or normal?" I said, "So it reaches your eyes." Fail.

I feel really really sorry for him.

His life, if he’d chosen it to be, could have been so much happier!

Instead, here we are. Nearing the end. And he’s so very very sad. Has been sad. Maybe always. Just waiting. Waiting. Waiting to die.

He’s working with a therapist for the first time ever...at my insistence. He thinks she’s snooty. I think she’s brilliant.

He’s getting physically stronger every day.

He knows he’s got to earn his way out of this one.

He’s been told more than once that he’s lucky to have me.

Whether he believes it or not.

I’m here.

Not bitter or resentful or obligated.

I’m...Resigned. 

Compassionate.

He’s lucky.

So am I.

In spite of him.



1: The City and County of Denver’s fire department provides a free service called Lift Assist to help people who have fallen and can’t get up.

2: I recently discovered that he was ordering pay-per-view porn nearly every day in addition to having subscribed to the Playboy and Hustler channels on cable. *shaking head* The internet is FULL of free porn, Dad. Seriously. Welcome to the 21st century.

Wednesday, October 14, 2015

Red is the New Black

It’s been a long time since I felt beautiful.

Years really.

And before you say or think anything...this isn’t a fish for compliments or affirmation or anything of the sort so, yannow, just let me finish.

When I say “felt beautiful”...that has very little to do with physical appearance - although physicality does play a small part. I think what I generally mean by feeling beautiful though is feeling good, positive, energetic, peaceful. 

I hadn’t felt beautiful or ugly or anything in between. I just...hadn’t given any thought to beauty or myself. At all. Completely disconnected. 

Invisible.

2013 was an epic year for major change - a series of (mostly) unrelated events - that would seem to change the trajectory of my life in ways I’d never anticipated. 

You know I bought a house.

You know I moved my dad to an independent/assisted living apartment.

I changed jobs.

What you don’t know is that Spux and I, well, we had a massive falling out. And someone who’d been such a huge presence in my life wasn’t there anymore and I started to withdraw from the places and scene where I might run into her to avoid conflict and discomfort.

You also don’t know that I quit Denhac. I didn’t have the time or energy or the enthusiasm to dedicate to the space anymore and I felt the members deserved a Board who could be there in ways I couldn’t. 

I suppose you might say I withdrew from that scene too.

So I was already feeling kind of lost at sea.

And then?

And then.

In November and December of that year, 2013, Acr0nym - my near constant companion, my non-sexual non-husband, my BFF - suffered a MAJOR mental health crisis. I mean, y’all, it got bad. And then it got worse. And then it got to New Year’s Eve and, well, I did the unthinkable. 

I had him committed.

It was dawn on New Year’s Day 2014 when I rolled back into my garage after having spent the entire night talking him down off the proverbial ledge and convincing him to go to the ER and subsequently sitting in the ER with him while waiting on pins and needles for the doctor to decide whether or not to place the 72-hour hold on him.

I fixed myself a cocktail at 7 a.m, watched the sunrise, and collapsed in ginormous racking sobs as the anxiety and terror and exhaustion of the prior weeks rolled right over the top of me in waves.

He was safe.

And I could shut down.

So that’s what I did. For many, many months.

Before I go any further, Acr0 was hospitalized for 13 days. During that time, his father died and so the staff worked to stabilize him enough to be able to release him so he could be with his family. It’s been a very long road since then but he is better now. So ever much better! For real!

2014 was a blur. There’s not much to say about it except to say, while my friendship with Acr0 was still intact, he had his hands full just trying to get by and so, for the first time in years, I was on my own. I think, after his father’s memorial service, I saw him a total of maybe six times throughout 2014 and even less in 2015. Also of note, my father, already declining in hearing, mobility, and function, was diagnosed with prostate cancer in February and underwent radiation daily for 6 weeks (the treatment worked - he’s cancer free). 

Mostly, 2014 and the first part of 2015, as far as I can recall, didn’t actually happen. (Although something good did happen! Spux and I made amends and are, for real, great friends again!)

Shut down, beat down, withdrawn, disconnected, I had a vague sense of the passage of time but viewed it with apathy - like time was passing but it wasn’t related to me - I was moving on automatic right through it. The more tired I felt, the more invisible I tried to become, and, with invisibility comes silence...on the blog, on social media, on any platform where I might have been heard and/or seen.

I will, however, assert here that I don’t believe I was depressed. I’ve experienced depression and this wasn’t it. Rather, I believe I was physically and mentally exhausted and getting sick...sicker by the minute and much sicker than I realized.

Until…

In the spring of this year, I suffered a series of health problems. 

I won’t go into it here...at least, not tonight...but it was an extremely loud and incredibly close wake up call to PAY ATTENTION! I wasn’t taking care of myself in any way. I thought withdrawing from people in my personal life would help me re-charge, re-energize and that would get me moving in the right direction - ANY direction - again. 

It didn’t.

The only purpose withdrawing did was to allow me an uninterrupted path to a complete physical break down. Woot.

That wake up call, as so often happens, was the exact call I needed to get moving in more ways than one. I started eating better. I started walking again. I bought a Fitbit. I started thinking more about myself and what was good for me and less about what others needed from me. I started to evaluate what was good, what was bad, what was necessary, and what was nonsense.

I started to care about and pay attention to me again.

I started to sleep again.

I started to really feel compassion again.

I started to forgive...everyone.

I started to emerge.

To see and be seen.

And THAT is how we come to now and feeling beautiful.

About a month ago, while I was on vacation, Acr0 took the day off to spend with me and he told me we could do whatever my heart desired.

I made a list. 


And so that’s what we did. It was a perfect day. The weather was gorgeous. There were no hiccups or tensions. Everything was entirely right with the world and incredibly easy in a way it hadn’t been in a couple of years.

At Tinkermill, where we ran into Monk earlier than we’d expected, the three of us walked out to the parking lot together and, as the sunlight hit me, Monk exclaimed, “You are beautiful!” completely out of the blue.

I was taken aback.

I hadn’t thought of myself as beautiful in what felt like forever. No one had thought to acknowledge me as beautiful in nearly as long.

And so I chewed on that for awhile.

And then I went shopping...for clothes...which I normally dread.

And all of a sudden what appealed to me wasn’t black, black, and some more black.

What caught my eye were reds and purples and blues. Oh my, yes. Lots of red.

I spent way too much money on clothes in colors and patterns...things I’ve abhorred in the past.

And then I wore them.

And, on the first day I wore red, as I drove toward work, I thought, “I feel really beautiful. I should wear more red.”

And so...I am.

Red. It’s the new black.

And I’m beautiful.